1. What is the CRANE Database?
The Cleft Registry and Audit NEtwork (CRANE) Database collects information about all children born with cleft lip and/or cleft palate in England, Wales and Northern Ireland. This database was set up by the Department of Health in 2000.
CRANE collects information on these children at birth or at diagnosis, and into childhood. This includes information about the surgical treatments children have had, and how they are getting on in terms of their speech, hearing, growth, dental health and overall health. You can read a bit more about this in the sections below.
Parents and carers are asked for their full and informed consent, to collect information into childhood, and can withdraw their child from the database at any time. No identifiable information is included in reports.