CRANE Database Data Flow Diagram

To download a copy of the CRANE Database data flow diagram – for details about the datasets, data collection and linkage, and data processing carried out by the CRANE Database team – click on the image below:

The CRANE Database has both a registry and audit function.

As such, CRANE collects a minimum dataset – registry information – including patient identifiers; which CRANE is allowed to collect on all children born with a cleft under our Section 251 approval. This data is collected for children born with a cleft lip and/or palate in England, Northern Ireland and Wales. Consent has to be obtained by the cleft services to record audit data on patient outcomes.

For a reminder of the registry and audit data items please consult the CRANE Data Dictionary found in the Resources section of this website.

The Clinical Effectiveness Unit(CEU) of the Royal College of Surgeons (RCS) , where the CRANE project team is based, acts as the data controller and processor for all data collected.

For more information about CRANE Database, please visit our Resources page and our FAQs for professionals and the public.

If you have any queries about these materials or this programme of work, please contact us.

Published 29 September 2021 (due for review September 2022).