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Data Collection Milestones for 2024

Analysis timeline 2024: Including key data submission deadlines

Click on the image below to download your copy of the graphic representation of the CRANE Analysis Timeline 2024.

More detail about the outcomes data required can be found below.

Timeline and outcome data required for the CRANE 2024 Annual Report

30 June 2024: Data collection cut off for 2024 Annual Report.
November 2024: Review of report at Cleft Development Group meeting (specific date TBC).
December 2024: Publication of 2024 Annual Report (specific date TBC).

We will report 5-year outcomes for patients born in 2015 to 2017 in funnel plots.

For patients whose outcome data are available and have not previously been submitted, please submit the following information required for each birth year.

Outcome \ Birth years	2007	2008	2009	2010	2011	2012	2013	2014	2015	2016	2017
Child Growth: Height & Weight at 5 years									✔	✔	✔
Decayed, missing or filled teeth in primary dentition (dmft) at 5 years									✔	✔	✔
Developmental Defects of Enamel (DDE) at 5 years									TBC	TBC	TBC
Decayed, missing or filled teeth in primary dentition (DMFT) at 10 years	✔*	✔*	✔*	✔*	✔*	✔*
Developmental Defects of Enamel (DDE) at 10 years				TBC	TBC	TBC
5-year old index score (‘complete UCLP’ cases only)									✔	✔	✔
Speech (CP/UCLP/BCLP cases only) at 5 years									✔	✔	✔
Psychology (incl. TIM and SDQ) at 5 years									✔	✔	✔

Key: “*” This information has yet to be published in Annual Reports. Nevertheless, this data should be summitted. To inform summary information provided in the Preliminary Report – to cleft services and Clinical Excellence Networks (CENs) – in April 2024. The Dental CEN will provide guidance on appropriateness of inclusion of DDE at 5 years and DDE & DMFT at 10 years in future Annual Reports.

To review the data that has been submitted to date by birth year and outcome type please use our guides, or contact us if you require help. Outcomes are not required where patients have declined consent.

Last updated: 7 February 2024.

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