Data Collection Milestones for 2022

Data Collection Milestones for 2022 – subject to change in light of COVID-19 pandemic

The information on this page will be kept under review, and will be subject to change in light of the evolving COVID-19 pandemic landscape.

Analysis timeline 2022: Including key data submission deadlines 

Click on the image below to download your copy of the graphic representation of the CRANE Analysis Timeline 2022.

More detail about the outcomes data required can be found below.

Timeline and outcome data required for the CRANE 2022 Annual Report 

  • 24 June 2022: Data collection cut off for 2022 Annual Report.
  • November 2022: Review of report at Cleft Development Group meeting (specific date TBC).
  • December 2022: Publication of 2022 Annual Report (specific date TBC).

We will report 5-year outcomes for patients born in 2012 to 2015; 2012-14 in funnel plots and 2015 in summarised/tabulated form (as in the 2021 Annual Report).

For patients whose outcome data are available and have not previously been submitted, please submit the following information required for each birth year.

Outcome  \  Birth years 2004 2005 2006 2007 2008 2009 2010 2011 2012 2013 2014 2015
Child Growth: Height & Weight at 5 years Sum*
Decayed, missing or filled teeth in primary dentition (dmft) at 5 years Sum*
Decayed, missing or filled teeth in primary dentition (DMFT) at 10 years TBC TBC TBC TBC
5-year old index score (‘complete UCLP’ cases only) Sum*
Speech (CP/UCLP/BCLP cases only) at 5 years Sum*
Psychology (incl. TIM and SDQ) at 5 years Sum*

Key: “Sum” – refers to summarised/tabulated information. Presented separately to allow comparison of the effect of the COVID-19 pandemic and the lockdown that ensued – as done so in the 2021 Annual Report.

To review the data that has been submitted to date by birth year and outcome type please use our guides, or contact us if you require help. Outcomes are not required where patients have declined consent.