Data Collection Milestones for 2021

Data Collection Milestones for 2021 – subject to change in light of COVID-19 pandemic

The information on this page will be kept under review, and will be subject to change in light of the evolving COVID-19 pandemic landscape.

Analysis timeline 2021: Including key data submission deadlines 

Click on the image below to download your copy of the graphic representation of the CRANE Analysis Timeline 2021.

More detail about the outcomes data required can be found below.

Timeline and outcome data required for the CRANE 2021 Annual Report 

  • 25 June 2021: Data collection cut off for 2021 Annual Report.
  • October / November 2021: Review of report at Cleft Development Group meeting (specific date TBC).
  • November / December 2021: Publication of 2021 Annual Report (specific date TBC).

We will report outcomes for patients born in 2004 to 2014. For patients whose outcome data are available and have not previously been submitted, please submit the following information required for each birth year.

 

Outcome  \  Birth years 2004 2005 2006 2007 2008 2009 2010 2011 2012 2013 2014
Weight at 5 years
Height at 5 years
Decayed, missing or filled teeth in primary dentition (dmft) at 5 years
Decayed, missing or filled teeth in primary dentition (DMFT) at 10 years
5-year old index score (‘complete UCLP’ cases only)
Speech (CP/UCLP/BCLP cases only) at 5 years  
Psychology (incl. TIM and SDQ) at 5 years

Outcomes are not required where patients have declined consent.

To review the data that has been submitted to date by birth year and outcome type please use our guides, or contact us if you require help.