Home > Resources > Data Collection Milestones for 2021

Data Collection Milestones for 2021

Data Collection Milestones for 2021 – subject to change in light of COVID-19 pandemic

The information on this page will be kept under review, and will be subject to change in light of the evolving COVID-19 pandemic landscape.

Analysis timeline 2021: Including key data submission deadlines

Click on the image below to download your copy of the graphic representation of the CRANE Analysis Timeline 2021.

More detail about the outcomes data required can be found below.

Timeline and outcome data required for the CRANE 2021 Annual Report

25 June 2021: Data collection cut off for 2021 Annual Report.
November / December 2021: Review of report by Cleft Development Group.
December 2021: Publication of 2021 Annual Report (specific date TBC).

We will report 5-year outcomes for patients born in 2011 to 2013. For patients whose outcome data are available and have not previously been submitted, please submit the following information required for each birth year.

Outcome \ Birth years	2004	2005	2006	2007	2008	2009	2010	2011	2012	2013	2014
Weight at 5 years								✔	✔	✔
Height at 5 years								✔	✔	✔
Decayed, missing or filled teeth in primary dentition (dmft) at 5 years								✔	✔	✔
Decayed, missing or filled teeth in primary dentition (DMFT) at 10 years				CEN only (poor data quality)	CEN only (poor data quality)	CEN only (poor data quality)
5-year old index score (‘complete UCLP’ cases only)								✔	✔	✔
Speech (CP/UCLP/BCLP cases only) at 5 years								✔	✔	✔
Psychology (incl. TIM and SDQ) at 5 years								✔	✔	✔

Outcomes are not required where patients have declined consent.

To review the data that has been submitted to date by birth year and outcome type please use our guides, or contact us if you require help.