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CRANE Newsletter – Issue 2021 (2) 1 April 2021 now available

Posted in eNewsletter, and General news.
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Download the April 2021 CRANE Newsletter here!

This issue includes information on:

• The CRANE 2020 Annual Report: Summary of Findings for Patients and Parents/Carers,

• updates to the Database to collect ethnicity,

• guidance on the improved capture of syndromes and additional diagnoses, and

• information about data collection milestones.

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