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The Cleft Registry and Audit NEtwork
Table 3. Diagnosis time
Number (%) of CRANE-registered children born between 2000-2018, and in 2019 alone, with a cleft lip and/or palate according to the timing of diagnosis and cleft type.
Year / Cleft type Time of diagnosis in relation to birth - n (%) All
Antenatal At birth Within 72 hours ≤1 week ≤1 month ≤6 months >6 months
n % n % n % n % n % n % n %
2000-2018
5,983
43.2
5,715
41.3
238
1.7
797
5.8
368
2.7
431
3.1
311
2.2
13,843
CL
2,022
62.8
999
31.0
17
0.5
67
2.1
20
0.6
73
2.3
23
0.7
3,221
CP
123
2.2
3,742
66.4
199
3.5
689
12.2
319
5.7
305
5.4
257
4.6
5,634
UCLP
2,587
81.4
542
17.1
3
0.1
17
0.5
3
0.1
24
0.8
2
0.1
3,178
BCLP
1,148
80.8
259
18.2
2
0.1
3
0.2
1
0.1
7
0.5
-
-
1,420
Non specified
103
26.4
173
44.4
17
4.4
21
5.4
25
6.4
22
5.6
29
7.4
390
2019
391
44.8
372
42.7
51
5.8
20
2.3
18
2.1
17
1.9
3
0.3
872
CL
144
69.2
59
28.4
3
1.4
1
0.5
1
0.5
-
-
-
-
208
CP
7
2.0
259
73.8
44
12.5
16
4.6
11
3.1
13
3.7
1
0.3
351
UCLP
155
87.6
18
10.2
-
-
2
1.1
1
0.6
1
0.6
-
-
177
BCLP
73
92.4
4
5.1
1
1.3
-
-
1
1.3
-
-
-
-
79
Non specified
12
21.1
32
56.1
3
5.3
1
1.8
4
7.0
3
5.3
2
3.5
57
6,374
43.3
6,087
41.4
289
2.0
817
5.6
386
2.6
448
3.0
314
2.1
14,715
NOTE: Totals for timing of diagnosis by year(s) are presented along the top row for each grouping of years and overall total (gray lines).