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The Cleft Registry and Audit NEtwork

The Cleft Development Group

About the Cleft Development Group (CDG)

The Cleft Development Group (CDG) has the overall responsibility for running the Cleft Registry and Audit NEtwork (CRANE) Database and has representation from patient groups, clinicians and commissioners.


The CDG is responsible for guidance on all aspects of the delivery of re-organised cleft care in England and Wales and, when asked, by Scotland and Northern Ireland. It gives advice to the cleft centres, to health authorities, trusts, boards, commissioning groups and consortia and to the Departments of Health in England and the devolved administrations. It represents all stakeholders in cleft care and works with all to ensure the highest quality of cleft care in the UK to all patients who need it. It inherited the responsibilities of the Cleft Implementation Group and the Cleft Implementation Monitoring Group, which were advisory groups which help implement the centralisation of cleft services after the Clinical Standards Advisory Group (CSAG) report 1998.


The CDG acts as a steering group, providing strategic governance for the project and has ultimate responsibility for the running of the CRANE database. It is responsible for providing data for cleft births and cleft treatment for England and Wales and it endeavours, with the cooperation of the health services in Scotland and Northern Ireland, to do so for the whole of the UK.


The national CRANE database had two primary functions when established:


a. The recording of all birth and demographic data related to children born in England and Wales with the congenital abnormality of clefting of the lip and/or palate, and where possible extending this to the whole of the UK and Ireland.


b. The recording of all treatment of children in England and Wales with clefts of the lip and/or palate and the outcome of such treatment, and where possible extending this to the whole of the UK and Ireland.


The Terms of Reference for the CDG (to be updated in May 2018), and further information on the CDG's governance and funding, are available as attachments (and upon request). If you have any questions about this information, please contact crane@rcseng.ac.uk

 

Please find below a list of current members of the CDG.  




Members of the Cleft Development Group (CDG) in June 2019 (List due for review October 2019)

Simon van Eeden

Chair, CDG

Victoria Beale

Clinical Director, North West, IoM & North Wales Cleft Network

Lorraine Britton

Lead Speech and Language Therapist, Trent Regional Cleft Lip & Palate Service

Alex Cash

Clincial Lead, South Thames Cleft Service

Claire Cunniffe

CLAPA Chief Executive

Michele Davis

Regional Programme of Care Manager, London

Sinead Davis

Chair, CEN for Cleft ENT and Hearing Consultant ENT Surgeon

Scott Deacon

CRANE Clincal Project Leader

David Drake

Cleft Surgery Training Interface Group

Yvette Edwards

Joint Representative of CDs and Managers Group

Helen Extence

Speech and Language Therapist, Swansea

Toby Gillgrass

Clinical Lead, Cleft Care Scotland

Vanessa Hammond

Clinical Psychologist CEN

Norman Hay

Clinical Lead, North Thames Cleft Service

Chris Hill

Northern Ireland Clinicians

Peter Hodgkinson

Clinical Lead, Newcastles Site, Northern and Yorkshire Cleft Service & Chair Cleft Centres

Nicola Hudson

Lead Clinical Nurse Specialist

David Landes

Public Health Consultant

Karine Latter

Nursing Deputy for Nicola Hudson

Kanwalraj Moar

Consultant Cleft Surgeon, Addenbrookes

Ailbhe McMullin

Specialist and Consultant Orthodontist, Royal Manchester Childrens' Hospital

Jason Neil-Dwyer

Clinical Director, Trent Cleft Service

David Orr

Cleft Services in the Republic of Ireland

Susan Parekh

Paediatric Dentistry CEN

Ginette Phippen

Speech and Language Therapist, Spires

Marie Pinkstone

Chair of the Lead Speech & Langauge Therapists (SLT) Group; and Lead SLT for North Thames Managed Cleft Network

Sandip Popat

Restorative Dentistry CEN

Helen Robson

Clinical Nurse Specialist, North West and North Wales

Craig Russell

Clinical Lead, Scotland

Jonathan Sandy

Lead of the Cleft Collective

Ian Sharp

Deputy Chair, CDG; CRG for Paediatric Services Representative; and Clinical Director, West Midlands Cleft Centre

Jackie Smallridge

Consultant Paediatric Dentist, CleftNetEast

Alistair Smyth

Clinical Lead for Leads Service

David Steel

Chair Programme Director, National Service Division, NHS Scotland

Imogen Underwood

President, Crainofacial Society, Principal Speech and Language Therapist, Birmingham Childrens' Hospital

Jan van der Meulen

Senior Epidemiologist, Clincal Effectiveness Unit

Mike Winter

Medical Director, National Services Division, Scotland


Cleft Development Group Minutes

CRANE Database - Cleft Development Group Minutes- May 2018

CRANE Database - Cleft Development Group Minutes - January 2018

CRANE Database - Cleft Development Group Minutes - October 2017

CRANE Database - Cleft Development Group Minutes - May 2017

CRANE Database - Cleft Development Group Minutes - October 2016

CRANE Database - Cleft Development Group Minutes - May 2016

CRANE Database - Cleft Development Group Minutes - October 2015

If copies of earlier minutes are needed, please contact crane@rcseng.ac.uk